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Charity Dinner on 19th October in Headingley

A charity dinner is being held in Headingley Stadium at 7 pm in Headingley.

Tickets are £36 – which inlcude dinner, an auction, a raffle and comedian.

The event is organised by Chris Peat. To buy tickets please email him at


Did you take part in the University of Birmingham Study 10 years ago?

IMPORTANT NOTE:  This is a message for RTS Support Group members who took part in the University of Birmingham research questionnaire 10 years ago.  

If you were an RTS family that took part  in the University of Birmingham study 10 years ago would you be interested in supporting again by participating in the 10-year follow up questionnaire?  We are now continuing this project by carrying out a 10-year follow-up study to find out about changes and progress since we first contacted you. This is the first study to follow up people with RTS over such a long period of time and the results of this study will be important for understanding how people with RTS develop and change as they grow older. The more people that take part in the research, then the more meaningful the results are. A good response at this follow up will provide new and valuable information.

For further information on how you can access the survey please contact Dr Jane Waite, University of Birmingham via 


IMAGINE ID Research Opportunity: Can you help?

IMAGINE ID is a research study that aims to increase understanding of children and young people with intellectual disability. It is supported by UNIQUE, the rare chromosome disorder charity. The IMAGINE ID team is very keen to learn more about the link between behaviour and rare chromosome conditions. The study, led by University of Cambridge, University College London and Cardiff University, hopes to collect information from over 5,000 families by 2019.

To participate in IMAGINE ID your child should be aged 4 or over. The research group is based in the UK but they are interested in families worldwide. If you live outside the UK, to take part you must have access to your child’s genetics reports. Taking part involves filling out secure online questionnaires about your child’s development and behaviour from the comfort of your own home. If you’re not comfortable with computers or do not have access to the internet, the IMAGINE ID team can go through the questionnaire with you over the telephone or in person. The questionnaires will take approximately 3 hours, but you are able to save your answers as you go and can log in an unlimited number of times to complete it.

After completing this you will receive a personalised summary report which you may find useful when your child is undergoing assessment for services, school or specialist treatment. If you wish, members of the IMAGINE ID team may also visit you at home to conduct an interview with you and puzzles with your child.

If you are interested and want to find out more about the IMAGINE ID study please contact them by telephone on +44 (0)1223 254 631 or email them at The team is very happy to answer any questions you have.

Be part of Research Study: IMAGINE ID.


We are pleased to advise you about a research study led by the University of Cambridge called IMAGINE ID. The study focuses on children diagnosed with a genetic condition which affects his/her learning.

The inclusion criteria for children to join the study are quite wide; we are looking to collect information from over 5,000 families with children aged 4-18 with intellectual disability due to a genetic cause, including RTS. We hope to learn more about the long-term behaviour and mental health of children and young people from this large group of families. Over 800 families have joined the study so far.

Please take a look at the information booklet via IMAGINE ID Invitation v1_1_160222

For further information, please contact:

Francesca Cooper

Research Assistant/Research Study Coordinator, IMAGINE ID

01223 254631



Members – please tell us if you change your email address

A reminder to all members who have indicated they are willing to receive communications from us by email – please make sure to tell us if you change your email address! If you don’t, you may miss out on communications and if we have to post them out of course it costs the charity to do so. If in doubt, drop us a line and we’ll check the records and update them if necessary.

RTS Support Group Policies

RTS Support Group Policies

The RTS Support Group management board take their responsibilities seriously and regularly review the charity’s policies.  

Children and vulnerable adults policy

Conflict of Interest policy

RTS Risk Policy

RTS Complaints

RTS Investment Policy

RTS Volunteer Policy

Fundraising Policy for the RTS Support Group (2)

RTS Management Committee Expenses Policy – to follow









Committee members needed to secure Group’s future

The number of people making up the management committee of the RTS Support Group has reduced gradually over the last couple of years, and with the loss of another two members earlier this year, and a further resignation taking effect next year, it has become urgent that more people are found if the current level of events and the Newsletter are to continue. Most committee members have been serving the Group for many years – some for well over 20 – and it is clear that new members are needed to secure its future, as well as to bring new ideas and energy to its activities.

If you have been considering whether to get involved in the running of the Group, now is the perfect opportunity! And if you haven’t thought of it before, why not consider it? 

What would becoming a member of the committee entail?
Members of the management committee are asked to become directors of the RTS Support Group, which is registered as a Company Limited by Guarantee. Being a director means being responsible for running the company, which is of course also a charity, and meeting any legal requirements. But if it  ever became insolvent, the individual directors’ liability would be limited to £1.

You need to be willing and able to:
– work as part of a team
– attend meetings 3 or 4 times a year, including taking part in conference calls via Skype occasionally (mileage is payable for travel)
– take part in the committee’s decision-making
– take on and progress action points
– help at events (what and where are negotiable)

In this computer age, it is also essential that you have access to and are comfortable with using email and other common software on a computer or tablet.

There are some other requirements, such as being over 18 and not being disqualified from being a company director, which also apply, but we will go through these with potential applicants and for most people they will just be a formality.

Please contact the Chair, Siobhan Lund, at if you would like to get involved, or just want more information on becoming a committee member.