Latest RTS UK News

Spring Family Weekend – You will want to Hold that Date!

We are delighted to announce that Professor Raoul Hennekam will be joining us at our Spring Family Weekend.

We are in the process of organising this event and details will be available as soon as possible.  

But we suggest that you put the date in your diary so you don’t miss out.

Saturday, 9th and Sunday, 10th June 2018 (Saturday until Sunday lunch)

Venue yet to be confirmed but will be in the Solihull area.

Any queries contact Maxine Aldred, Events Co-ordinator via

2017 Sportsman’s Dinner – Best Yet!

Standing ovation at RTS Sportsman’s Dinner

On October 13th over 130 people attended the 12th RTS Sportsman’s Dinner once again held at Headingley Carnegie Stadium in Leeds, home of the Leeds Rhinos and Yorkshire County Cricket Club.  As most of you will know, the Dinner has been a regular feature of our fundraising event calendar.  Always a successful and enjoyable evening, this year was no exception. The Dinner (as well as the RTS Golf Day) has been organised for the 12 years by our very own John Peat. John is our RTS Ambassador and Fundraiser.

Following a super 3-course dinner, Malcolm Lord, well known after dinner speaker and MC took to the floor to make sure the evening was a true Sportsman’s Dinner!  The comedian kept the laughs coming, the alcohol flowed and everyone supported the auction of sports memorabilia and raffle.  Big thank you to everyone that donated prizes and auction goods.  The evening was a roaring success and was quoted as being “the best ever”. 

During the evening, a true supporter of the RTS Support Group, Rob Burrow, announced that he was auctioning his signed rugby boots on Ebay (those that he wore for his final professional game). After 492 games and 8 grand finals Rob has retired as a player, although not retired from the sports arena. See his interview with the Yorkshire Evening Post below. That very kind gesture has added another £760 to our funds and we are very grateful to Rob, not only for this but for his never-ending support of the RTS Support Group and John and his family. 

However, at the end of the evening John announced that he was standing down from organising the fundraising events due to personal reasons and this would be the final Sportsman’s Dinner.  He was given a very well deserved standing ovation and was overwhelmed by the support.  He asked those in attendance whether they wanted it to continue and in John’s words; ‘I was blown away by the offers of support in the room on announcing my ‘retirement’ and people were determined that this event should and would continue in its current format but with others taking on the organization.’  So the Sportsman’s Dinner continues and we would like to thank those taking over the organisation of the evening.  We are also pleased to say that John will remain in the background helping with the details.

As well as a huge thank you to John for all his work putting on the RTS events over the years, we would also like to thank those that have been firm supporters; local businesses, friends and family.  Over the 12 years, the Sportsman’s Dinner has raised in the region of £50,000 which has helped the RTS Support Group to continually provide support our member families. 



Diary Date …… Hold the Date ….. Diary Date …. Hold the Date


Diary date for you.

The next event will be a special event as Professor Raoul Hennekam will be joining us.

Saturday, 9th and Sunday (until lunchtime) 10th June

Location will be in the Solihull area.  

Details available once confirmed.


December 2017 Family Day – Last chance to book

2nd December 2017 Family Day 

The RTS Family Day is being held on Saturday, 2nd December 2017 at Letchworth Hall Hotel. Letchworth Ln, Letchworth Garden City SG6 3NP

The programme consists of speakers, research, Celebration of Achievement and RTS Has Talent, tombola, raffle and loads more. 

Our events are all about families supporting one another and giving them the opportunity to talk openly about their issues – family to family support.

You can book your tickets :

Xmas Family Day Invitation Details



July Family Day

July 15th Family Day 

The RTS Family Day was held on Saturday, 15th July at Holiday Inn, Birmingham Airport.  We were delighted to welcome families to the event.   The day was jam packed and everyone was ready for our full programme.

The programme consisted of speakers, research, Celebration of Achievement and RTS Has Talent, tombola, raffle but one of the most important reasons for our families to attend was talking to each other.  Our events are all about families supporting one another and giving them the opportunity to talk openly about their issues – family to family support.

Thanks has to go to:

Dr Jane Waite, Research Fellow & Clinical Psychologist, Cerebra Centre for Neurodevelopmental Disorders School of Psychology, University of Birmingham and team

Gavin Prideaux-Williams from GPW Trusts

David Williams from Cerebra

Sheri Riccardi, Human Medical Genetics and Genomics Program, University of Colorado School of Medicine


Another session which will be part of every event is our Celebration of Achievement.  Every small step our RTS individuals make is a major achievement and we want to celebrate this.  Those attending were asked to send in snippets showing the great things being achieved.  This session was a real tear jerker – presenting was so hard but so wonderful – the tissues were flowing.  Can’t wait for the next event and more achievements. 

And last but not least our favourite, RTS Has Talent.  Our acts were so good and everyone said that this was just the best.  At the beginning we only had a couple of entries, but in the end we had a tremendous show.  Thank you to everyone that took part. 


Autumn RTS Newsletter – we need your help please

Lauren Wyatt, RTS Newsletter Editor is in the process of putting together the Autumn 2017 Newsletter.   We rely on families to send through family stories, photos, tips and information which will help fellow families.  Have you done any fundraising for us – please send through some photos and an article.  

Can you help?  Please send anything direct to

Look forward to hearing from you soon.  



New RTS Newsletter Editor announced

NEW RTS Newsletter Editor announced

I have been Newsletter Editor for many years now and would like to take this opportunity to thank everyone that has helped.  Without the input of RTS families, there is no newsletter.

Following the RTS Support Group AGM and retirement of Barbara Baron as Secretary we had to have a shuffle of roles.  Therefore the RTS Support Group Committee is as follows:

Siobhan Lund           Director and Chairperson

Dawn Elliker             Director and Treasurer

Maxine Aldred          Director, Secretary and Events Co-ordinator

John Peat                  Director, RTS Ambassador and RTS Fundraiser

Becky Lawlor            Director and Social Media

Liz Halstead             Director, Membership Secretary and Organisation Liaison

Lauren Wyatt           Newsletter Editor

Rich Wyatt                Fundraising 



HOLD THE DATE: RTS Xmas Family Day 2nd December

We are in the process of organising our Christmas Family Day.  This will be held on 2nd December at Letchworth Hall Hotel.  

Details will be posted very soon and members will have details by post as well.

Online booking open soon.


Family Day Bookings Closed

We have had to close the bookings for the Family Day being held on Saturday, 15th July.   

Sincere apologies if you have not yet made your booking.





RTS Golf Day – Cookridge Hall Golf Club

The RTS Golf Day 2017 is being held on Monday, 24th July at Cookridge Hall Golf Club, Cookridge Lane, Leeds  LS16 7NL.

18 Holes of golf and food:  £44 per person

Offering spectacular views across the Yorkshire Dales, Cookridge Hall continues to pave the way in setting the standards for golf in Leeds, Yorkshire and beyond. Our par 72 championship golf course caters for golfers of all abilities whilst inside our 18th century clubhouse; you will find exceptional service and unrivalled hospitality. A mere 15 minutes from Leeds City Centre within the famous golfing belt of north Leeds, Cookridge Hall has everything you could ever wish for in a golf facility.

  • The competition is individual Stableford off full handicap.  
  • Start time:  12.30  off first and third tees.
  • Putting Competition 
  • Nearest the Pin Competition
  • Nearest the Pin in 2 shots on the 18th hole (over a pond)

 Cookridge hall is a nice course in north Leeds just near the airport The competition will be an individual Stableford comp off full handicap.  We will start at 12.30 off the first and third tees.  Before the competition starts there will be a putting competition with players paying £5 for two new balls with a chance to win a prize, (which I will sort soon.  There will also be a nearest the pin competition and a nearest the pin in 2 shots on the 18th hole over a pond.  I have a small prize for the nearest the pin holes and I had them engraved.  The winner will also have a small engraved prize along with the usual trophy.  As the golf course won’t allow us to have a shot-gun start, so when competitors have completed their round of golf food will be served on a rolling basis. 

Sponsorship is available at only £50.