IMPORTANT NOTE:  This is a message for RTS Support Group members who took part in the University of Birmingham research questionnaire 10 years ago.  

If you were an RTS family that took part  in the University of Birmingham study 10 years ago would you be interested in supporting again by participating in the 10-year follow up questionnaire?  We are now continuing this project by carrying out a 10-year follow-up study to find out about changes and progress since we first contacted you. This is the first study to follow up people with RTS over such a long period of time and the results of this study will be important for understanding how people with RTS develop and change as they grow older. The more people that take part in the research, then the more meaningful the results are. A good response at this follow up will provide new and valuable information.

For further information on how you can access the survey please contact Dr Jane Waite, University of Birmingham via