If you have found web sites that you feel would be useful for others to know about then drop us a line via email (inquiries@rtsuk.org).

 

UK Government benefits, including blue badge and much more:
http://www.gov.uk/browse/disabilities

Advice, support and information across many disability issues:
http://www.disabilityrightsuk.org

Independent parental education support service:
http://www.ipsea.org.uk

Advice and support service for all carers:
http://www.carersuk.org

Support for siblings of disabled individuals:
http://www.sibs.org.uk

Independent support across all areas including education, health and social care-specific to disabled children:
http://www.cafamily.org.uk

Support for those with or caring for someone with a learning disability. Also provides advice on wills and trusts:
http://www.mencap.org.uk

A service for advice specific to autism. Also a telephone helpline available:
http://www.autism.org.uk

National organisation for those with a severe learning disability and associated behavioural issues:
http://www.challengingbehaviour.org.uk

Provide grants for specific requests to children with a disability:
http://www.familyfund.org.uk

An organisation providing support with bladder and bowel problems in children. Helpline available too:
http://www.eric.org.uk

A not for profit organisation that finds and sells products that improve the lives of disabled children:
http://www.fledglings.org.uk

Support and training provider to help with sleep issues in children:
http://www.thechildrenssleepcharity.org.uk

The Essential Guide to Planning a Fundraising Event:
https://www.sunshineevents.co.uk/planning-a-fundraising-event/

Cerebra website:
http://w3.cerebra.org.uk

Cerebra Problem Solving Toolkit:
http://w3.cerebra.org.uk/help-and-information/guides-for-parents/problem-solving-toolkit

Cerebra on Anxiety:
http://w3.cerebra.org.uk/help-and-information/guides-for-parents/cerebra-anxiety-guide-guide-parents/

Cerebra on Challenging behaviour:
http://w3.cerebra.org.uk/help-and-information/guides-for-parents/managing-challenging-behaviour-factsheet-2/
http://w3.cerebra.org.uk/help-and-information/guides-for-parents/

Cerebra on Sleep:
https://www.cerebra.org.uk/help-and-information/sleep-service/

FIND website which has information on for rare genetic syndromes:
http://www.findresources.co.uk/

RTS Growth Charts for boys and girls:
http://www.rubinstein-taybi.org/html/male.html
http://www.rubinstein-taybi.org/html/female.html

Unique Chromosome disorder guides have a lot of detailed genetic information:
CREBBP: Chromosome 16p13.3 (guide available for RTS)
EP300: Chromosome 22q13.2 (no guide currently available for RTS)
https://www.rarechromo.org/disorder-guides?s=

 

Let us know if the above links stop working (inquiries@rtsuk.org) and please remember that the RTS Support Group accepts no responsibility for the content or reliability of any external website nor does it endorse any views or products expressed therein; also the RTS Support Group is not responsible for the privacy practices of such sites.